Sanman Kelkar Post awareness and issues
This is Sanman Kelkar, suffering from Brain Cancer since 2011. Felt like sharing my experience. Anyway, its a big one. Apologies if someone might find it boring but a humble request to go through till the end.
I live in Mumbai. Now 41 years old, I had gone to Mohali, Chandigarh for an official visit on 25th Jan 2011. On 26th Jan while walking I banged myself on a glass wall. The persons around me told that I had a convulsion, and was convulsing for almost 15 mins. My colleagues admitted me into the nearby IVY Hospital in Mohali immediately. I was unconscious and shaking till I reached the hospital. After the admission MRI was done and I was detected with a 4 cm tumor in the right side frontal lobe of the brain. In medical terms it is called as Oligodendroglioma. Low Grade II. According to the doctors, It's the least dangerous tumor but unfortunately it was interleaved in the brain. I was immediately rushed to Mumbai and admitted to Hinduja hospital under Dr. B.K.Misra. I had to undergo Active Craniotomy( Surgery was done under mild anesthesia so that doctors could speak to me. They were constantly telling me to raise my hands and legs just to check whether my motor functions were functioning or not.). After around 6 hours of surgery, I felt uneasiness and told the doctors that I think I am going down. They told me not to worry and gradually closed the surgery. With God's blessing I came alive from the Operating Room. But unfortunately only 0.5 cm of the tumor out of 4 cm was removed from my brain since it was interleaved and according to the doctors it was too risky to touch any other parts of the brain( I could have lost my memory, I could have been paralyzed, etc, etc). Then I was advised Radiation and Chemotherapy. I had to take a capsule of Temodal for chemo and then undergo Radiation. This was for 6 weeks(5 days a week) i.e. 30 cycles. I use to take radiation, go to office and then come back. This really took a toll on my health. I couldn't eat solid food since I was feeling nauseous continuously. My diet was only butter milk and ORS(Oral Rehydration Salts) like Electral. After Radiation the convulsions are still there, Now they are increasing. In spite of MRI report showing no growth of any sort, I am still having repeated bouts of convulsion. Anyway, I am still fighting and will keep on fighting. I strongly believe in will power. Anyone with Brain Tumor(I sincerely hope there is no such case since Brain Tumor is the worst tumor to have), Kindly share his/her experience or any other alternative for stopping the convulsions.
Thanks for bearing with me,
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